Monday, September 26, 2011

Racism and Research: The Case of the Tuskegee Syphilis Study

Summary of Allan M. Brandt’s “Racism and Research:
The Case of the Tuskegee Syphilis Study”

“In retrospect the Tuskegee Study revealed more about the pathology of racism than it did about the pathology of syphilis; more about the nature of scientific inquiry than the nature of the disease process. The injustice committed by the experiment went well beyond the facts outlined in the press and the HEW Final Report”(27) writes Allen M. Brandt. In his 1978 article, Racism and Research: The Case of the Tuskegee Syphilis Study, Brandt is extremely critical of the Department of Health, Education and Welfare’s (HEW) Final Report of the Tuskegee Syphilis Study that was released in 1973. Brant contends that the report fails because it failed to examine the experiment in the broader sociological context.

In 1932 the U.S. Public Health Service (USPHS) began a study in the town of Tuskegee in Macon County, Alabama. The USPHS intended to examine the effects of untreated syphilis by observing 600 men (400 who had syphilis and 200 who were not infected). The experiment was originally supposed to last only six months, but it actually lasted for 40 years. During this time the 400 infected men were deceived and lied to, they were told that they were receiving treatment for “bad blood.” In actuality the men were receiving no such treatment, even after 1947 when it became widely know that penicillin was a very effective treatment. Instead these 400 men were being given ineffective tonics and ointments along with aspirin. To make matters worse, not only were the doctors withholding treatment, they were also effective in getting other local doctors and even the U.S. Army to not treat these men. Brandt cites example after example of how the USPHS, from day one, sought to intentionally deceive and mislead the black population in Tuskegee. The failed to inform the participants of the true facts and intentions of the experiment, and therefore could not have received proper consent. The USPHS told the study’s participants that they were receiving government issued medical treatments, they promised hot meals and even monetary assistance with burial costs in order to keep the men coming back. It is difficult to see how such deceptive practices could have been allowed to occur without looking at the influence of racism.

In the early twentieth century Social Darwinism was a commonly held belief that justified and rationalized American racism. “Essentially primitive people, it was argued, could not be assimilated into complex, white civilization. Scientists speculated that in the struggle for survival the Negro in America was doomed. Particularly prone to disease, vice and crime…” (Brandt 21). It was thought that blacks were particularly susceptible to venereal diseases because of their natural propensity for lust, promiscuity and immorality. Many scientists and doctors also argued that blacks were by their nature unlikely to seek medical care and treatment for syphilis. This racist undercurrent is what allowed the Tuskegee Study to occur. The scientists and doctors involved saw the black participants and genetically inferior to themselves. They justified what they were doing by telling themselves that the men they were withholding treatment from, and using as guinea pigs, would not have sought treatment anyway. The continued suffering and spread of the disease and death among this population was an evolutionary inevitability.

Brandt effectively argues, that one cannot truly examine much less understand the Tuskegee Study without acknowledging the commonly held racist beliefs of the time. “Failure to place the study in a historical context also made it impossible for the investigation to deal with the essentially racist nature of the experiment” (Brandt 27).

Work Cited

Allan M. Brandt. 1978. Racism and research: The case of the Tuskegee
Syphilis study. The Hastings Center Report 8(6): 21-29.

9 comments:

  1. It's disturbing, though no entirely surprising, that racism would allow this study to take place. Even more shocking is that the study continued until 1972. I wonder how this study was able to continue for so long.

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  2. I wrote a paper on the Tuskegee syphilis study about a year ago, and it's such a disturbing study, I'm not sure I can give a word that summarizes the cruelty of it all. Heinous? Even that word is being quite nice. It may have had good intentions at the very, very beginning of the study, but we know how the rest of the story goes. One particularly disturbing addition: Not only was penicillin regarded as an effective treatment following WWII, but the Nuremberg Code (which dealt with medical ethics) was created in 1947 following the human experimentation conducted by the Nazis. If nothing else, the newly established Code should have waived a big red flag at the Tuskegee study. But it didn't. Furthermore, it took our government another 25 years to make a formal apology to the victims (under Bill Clinton's second term). I was 9 at the time. That apology should have been made long before I was born.

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  3. I should point out, if anyone is curious, here's the apology I mentioned in my previous comment: http://www.youtube.com/watch?v=l1A-YP24QwA

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  4. It's impossible for one to think something like this would actually happen in United States. We now have lots of agencies, regulations and rules. Hopefully we won't repeat history.

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  5. The fact that this study even occurred showcases that the Hippocratic tenant of "Do no harm" that physicians are supposed to abide by is complicated by social biases. It's obvious nowadays that this study is completely unethical and subversive, but the physicians that participated in it completely ignored taking into account the reaction and effect on the human component of the experiment because they didn't view them as beings that were equivalent to themselves. From Tuskegee to the atrocities of the Holocaust (as mentioned above) when researchers only think in terms of subjects ethical perversion disguised under the guise of science results.

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  6. These just shows the indecency that racism creates within a society. The fact that the doctors withheld treatment from these patients because of their demographic and did so for nearly 40 years is a belittlement of humanity and the humane. This type of experiment/research is disturbing not only because of the effects it had on the patients but also by the immorality it reflects upon the researchers for their disregard and belittlement of other human beings.

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  7. I first learned about the Tuskegee Syphilis trials in my Epidemiology class a while back. As other mentioned earlier how unethical and immoral this act was but something more to take for this is how it gave a bad image and distrust toward the CDC and the American public health industry by getting away with this for as long as it did. I am glad studies are more regulated in consent and safety but just wish it would not have to become that way as a result of this.

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  8. This was a very well written post, and I especially enjoyed the opening line being a quote directly from the text. The way you used this rheotorical device was very effective in arousing my interest in the summary. Moreover, this article clearly brought into question ethics, especially those used in medicine,and how they have evolved to the ethics used today. Do you think medical doctors still withhold vital information to patients, and if so, how would we ever find out about it (since the patient probably won't know until it is too late)?

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  9. Not playing devil advocate, but this event in history it crucial to our current epidemiology status. This is one, if not the biggest ethical epidemiological study that pushed society to have a criteria and code of ethics when we are performing medical studies. This event lead us to require adequate consent from the people involved, even minors, in a study as well as lead us to better understand how our ethics and values are intertwined in our the health education society is viewed by everyone. While this is a horrible event in history, it's event like this that mold our current health sector today.

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